Hartley Autism -

  • Intermittent Denial of Service attack is causing downtime. Looks like a kiddie 5 min rental. Looking into some solutions.

John Merston

the return and dislike
kiwifarms.net
Also, OT, in regards to Alfie Evans and Charlie Gard, as mentioned upthread:
https://www.judiciary.uk/wp-content/uploads/2018/02/alder-hey-v-evans.pdf Here is a link to the Judge's findings for the Alfie Evans case, I'm too stupid to figure out how to do a proper link.

Alright, so I saw on that Tard Baby General thread that apparently both these cases have been majorly misrepresentated in the US, mainly by the "pro-life" crowd who have somehow got involved. If things actually happened the way those people were saying then I'd totally be against it all as well.

I know a lot about Alfie Evans and less about Charlie Gard, but it seems like people are conflating the two so whatever. Alfie Evans had some crazy degenerative brain disorder, one that hadn't yet been seen in anybody else. Every time they scanned his head it had worsened. Eventually he had less brain than we can estimate the Hartleys had/have. Because they hadn't seen this condition before, his doctors and specialists and experts and shit couldn't say for sure whether he could interpret pain.

When the hospital wanted to withdraw futile treatment and focus on palliative care, the parents objected, which is fine, it's their kid, and they're still kids themselves, and they're not doctors, they can see their little boy right in front of them so how can he be gone, can't blame them for wanting to fight the advice of the doctors so they went to court. In the UK, children have their own rights. In the US, kids are essentially "property" of their parents, which a lot of people seem okay with and I guess due to cultural differences I find sort of messed up but I won't spend time on that. Kids have their own rights, and when something the parents want conflict with what is objectively best for the kid, then the courts step in to decide what should happen. The NHS had nothing to do with this. The government had absolutely nothing to do with this. The cost of taking care of Alfie had nothing to do with this. It was all purely to stop keeping his body alive while what little brain he had left had constant seizures.

Italy offered him a passport, which was nice of them. Italy offered to maintain palliative care for him, which again was very nice, but palliative care was what he was receiving in England. There was no experimental treatment in Italy. Is that something the American papers said? I saw that stated a few places closer to the time. But yeah, all Italy was going to do was keep him comfortable while he died. Which is what Alder Hey wanted to do, and was why they were in court in the first place.

The court shut down the transfer to Italy just in case Alfie could feel pain. They weren't sure if he could feel pain, because he couldn't feel anything else, but just in case he could, they wanted to prevent anything more strenuous. Letting him be airlifted and transferred to Italy when he was having constant seizures would have been seriously negligent, IMO, but my opinion doesn't matter. The courts' did, and they decided it was, so he didn't go.

It was sad, yes, but the kid was farther gone than the potatoes. The only reason it really got so much international attention was because of the US pro-birthers hyping it so much, and the only reason it got so much domestic attention was probably because of the absolutely mental "Alfie's Army" scumbags who congregated outside the hospital and spent their days spitting on anyone walking in or out, doxxing the medical staff and pulling the fire alarms. At a children's hospital, for fuck's sake. Because if Alfie were sentient, he'd totally appreciate those people aligned themselves with him.

Aaand now Charlie Gard. I don't remember as much about him because I don't think I cared that much at the time, not a nice person, blah blah, but his situation was kind of different. He was also severely fucked and definitely on the road to ruin etc but his parents weren't willing to let him go, and a doctor in the US offered them this experimental treatment, and they wanted to take him but the courts said no because it would have been cruel to move him, and he died, and then it turned out that the doctor who offered the experimental treatment hadn't even bothered to look at Charlie's most recent brain scans and when he did he realised that whatever the treatment had been, it wouldn't have worked anyway because Charlie's condition had deteriorated too far by then. So in that case I think it was the US doctor's fault rather than purely the parents' fault. I really can't remember much of it though.

So yeah sorry for the huge mostly-irrelevant post but a few people mentioned Alfie Evans (though had him and Charlie Gard conflated I think) so I thought I'd take advantage of my sperg-level following of the former at least and throw in some stuff
The Gard and Evans cases were fucking hilarious.
  • American parents insist on keeping potato children alive against medical advice: Kiwis mock them mercilessly
  • British parents insist on keeping potato children alive against medical advice: Kiwis fawn over them and scream about the government is murdering the poor kids
 

Barbarella

Guards! To the Mathmos with this winged fruitcake.
True & Honest Fan
kiwifarms.net
The Gard and Evans cases were fucking hilarious.
  • American parents insist on keeping potato children alive against medical advice: Kiwis mock them mercilessly
  • British parents insist on keeping potato children alive against medical advice: Kiwis fawn over them and scream about the government is murdering the poor kids
I only speak for myself, but the reason I mock Gwen is because she uses her potatoes for attention, asspats, and for ego gratification.

We don’t know what the Gards would have done.

Don’t remember any Evans case.

I really don’t think these cases are analogous.
 

Fliddaroonie

I'm a spooky ghost! Whooooo!!! Ectoplasm!!!!
kiwifarms.net
I only speak for myself, but the reason I mock Gwen is because she uses her potatoes for attention, asspats, and for ego gratification.

We don’t know what the Gards would have done.

Don’t remember any Evans case.

I really don’t think these cases are analogous.
All kids had no chance of living and a shit quality of life. No amount of medical treatment would help, and anything to treat them was just keeping them alive to satisfy the feefees of the parents who were not Doctors, and it would have prolonged their misery and suffering.

People don't understand that sometimes "cruelty" is the biggest kindness we can offer a person living a shit, miserable, destined-to-end-soon life.
 

Muscle Bra

I passed high scholl bitch!
True & Honest Fan
kiwifarms.net
People don't understand that sometimes "cruelty" is the biggest kindness we can offer a person living a shit, miserable, destined-to-end-soon life.
And, conversely, the "kindness" of keeping someone alive well past their expiration date is frequently the cruelest thing we can do to them.

There's the thought for the day... sigh
 

Fliddaroonie

I'm a spooky ghost! Whooooo!!! Ectoplasm!!!!
kiwifarms.net
And, conversely, the "kindness" of keeping someone alive well past their expiration date is frequently the cruelest thing we can do to them.

There's the thought for the day... sigh

Ha, sorry for being such a sunbeam :p

I mean, I do get the pain of losing a child you know will die of an incurable condition to an extent. It's heartbreaking. But I cannot understand the type of person who would think "naw, better to have a creature in agony, who will have no quality of life AT ALL" rather than me have to let go"
 

THOTHunterAlice

I told you the merge was gonna happen.
True & Honest Fan
kiwifarms.net
All kids had no chance of living and a shit quality of life. No amount of medical treatment would help, and anything to treat them was just keeping them alive to satisfy the feefees of the parents who were not Doctors, and it would have prolonged their misery and suffering.

People don't understand that sometimes "cruelty" is the biggest kindness we can offer a person living a shit, miserable, destined-to-end-soon life.

Building off of that, I still cannot wrap my head around why any parent would let their kid who has as much intelligence as a sea sponge and have their organs slowly failing would allow them to live as long as the hartley hooligans have. I mean- if Gwenneh loved them as much as she claims- wouldn't she do the thing that would lead to the least amount of suffering or would end it?
 

MysticMisty

kiwifarms.net
British parents insist on keeping potato children alive against medical advice: Kiwis fawn over them and scream about the government is murdering the poor kids
I can't imagine that happening in this particular sub-forum since everyone here is very pro-choice, but elsewhere I wouldn't doubt it. My guess would be it happened in Articles and Happenings.
 

MirnaMinkoff

Mama, nobody sends you a turd and expects to live.
True & Honest Fan
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The difference is government interference and you know it, you pillock.

At least Lola and Claire's didn't require 24/7 life support. In the two UK cases you literally had a children with no brain activity that required several machines to keep their bodies functioning. Claire and Lola are far easier to defend than the UK cases. The UK cases were like Jahi McGrath.
 

John Merston

the return and dislike
kiwifarms.net
At least Lola and Claire's didn't require 24/7 life support. In the two UK cases you literally had a children with no brain activity that required several machines to keep their bodies functioning. Claire and Lola are far easier to defend than the UK cases. The UK cases were like Jahi McGrath.
I think appearance has a large part to do with it as well. The Hartley Hooligans just look plain wrong, while Charlie and Alfie looked superficially normal despite being on an even deeper level of potatodom.
 

Popoto

Carbly Hydrated
kiwifarms.net
Yes, how dare the UK government not save a baby that was doomed to a life of potatohood.
Honestly, I do notice a lot of this knee-jerk reactionary opinions on Kiwi Farms. Every fucker on the rat king subforum is a TERF until they go right over to the TERF thread on community watch. Heck, just watch the cognitive dissonance between the trans reddit communities thread and the TERF thread. If I had my way everyone would get mad on the innernet ratings all day errday.
 

AnOminous

each malted milk ball might be their last
True & Honest Fan
Retired Staff
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It's amazing the suffering some people want to see allowed just to stop deh ebilz gubmint interfering.

There was no suffering to prevent. The parents' bad choice to seek medical intervention abroad may have been foolish and a waste of time and money, but the government had no legitimate authority to step in and prevent it.
 

John Merston

the return and dislike
kiwifarms.net
There was no suffering to prevent. The parents' bad choice to seek medical intervention abroad may have been foolish and a waste of time and money, but the government had no legitimate authority to step in and prevent it.
That's not how Alfie's Army saw it. They thought if they simply REEEEE'd hard enough, God himself would grant Alfie a brand new brain.
 

Ronnie Rocket

toxic talking turd
True & Honest Fan
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At least Lola and Claire's didn't require 24/7 life support. In the two UK cases you literally had a children with no brain activity that required several machines to keep their bodies functioning. Claire and Lola are far easier to defend than the UK cases. The UK cases were like Jahi McGrath.
I don't disagree with the seriousness of the cases and I don't believe that the parents should have been so insistent regarding medical intervention, but ultimately it's not the government's place to decide that.
 

MirnaMinkoff

Mama, nobody sends you a turd and expects to live.
True & Honest Fan
kiwifarms.net
I don't disagree with the seriousness of the cases and I don't believe that the parents should have been so insistent regarding medical intervention, but ultimately it's not the government's place to decide that.

It was the government enforcing a team of Doctor’s opinions treating the children, not politicians coming to the hospital picking and choosing which babies get treatment.

There was no controversy about the decision from the medical or scientific communities. The only disagreement about the decision was due to high emotion and religious elements, though I’m at a loss to understand how religious types believes using cutting edge science to keep a body’s vital signs going is god’s will. God’s verdict was death many months before the government ever intervened.
 

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