Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

TonySoprano

"Fuck off you Irish cunt"
kiwifarms.net
As a medfag, the most annoying thing about the gastroparesis claims it that they are bullshit. I have never seen a true case of idiopathic gastroparesis. It is almost always secondary to another condition (usually poorly controlled diabetes). And anybody I do see who claims it is a young woman. Yeah, yeah, I've heard the claims that women's stomachs move slower, progesterone bullshit, but I've never met a 65 year old woman claiming GP or a 45 year old man. People can have post infectious GP, but it pretty much always resolves with little intervention. So that's no fun for munchies. I know at least one GI attending who doesn't even believe idiopathic GP exists, and I tend to agree with him. I wish for once someone would claim something new and exciting. This GP/EDS/MCAS/CCI shit is boring!
"It is almost always secondary to another condition (usually poorly controlled diabetes)."

Bingo! Even then it's uncommon... And comes after a fuck ton of other complications. Guy I know had to travel miles because only one doctor in the entire country here knew a thing about GP! But all these young girls definitely have GP and are dancing the walls at the thought of TPN.

That's what I don't get. Why do doctors (I know it's not just the states but I'll say usa) in the usa give them things such as TPN when it's a last resort. It's a serious, fucking serious thing... And it's so obvious that none of these idiots have GP... I always assumed it was because of the fact you basically pay your way there when it comes to health care. Surely that many doctors aren't believing this shit?

Someone recently posted pics of all the food someone claiming GP has had lately. You eat nothing, and if you do have a nibble you'll pay for it in a huge way... I just can't wrap my head around why they're entertained medically unless some Dr is raking in money, that at least I'd understand.
 

GenociderSyo

Syo
kiwifarms.net
bahahahaha these fucking DID people are whacked tf out.
Posted about this last year on the DID fakers of TUmbler thread:

I will use the word they in here only due to the fact that I want to be as careful as possible to not disclose any information.

It's crazy that people would pretend to have a disorder caused by extreme abuse. I work with severe mental illness and disabilities and in the entire time I've only had two clients who could be diagnosed with D.I.D. and one who was diagnosed DD-NOS. They did not come in a different person every day and every one of them was diagnosed with PTSD as well. The DD-NOS diagnosis was specifically made because they showed signs of dissociation, but they lacked the age of abuse and inability to remember events, specifically in childhood, required for D.I.D.

If they were triggered during our talk yes they would state change, but it's hard to explain how it presents in real life cause its not some showy thing like media says. Think of having a discussion with someone and they get to a topic and blank slate on you. Their affect would either be blunted or exaggerated and when the memory was over they may have been a bit disorganized, but it was not suddenly another person in the room.

This is a very controversial diagnosis, and you see surges of people self-diagnosing it after media comes out focused on it. After United States of Tara came out we had an influx of people who were self-diagnosers. And there are doctors who will never diagnose it because you don't "treat" for D.I.D. you treat for the symptoms it causes the PTSD aspects. There is no medication that is going to magically stop dissociation or depersonalization, its therapy and a hell of a lot of it to deal with the situations that happened. "
 

Punkinsplice

My dog and I talk shit about you
kiwifarms.net
Can you imagine what the parents think when they find out their kid is going around saying that he/she has DID? Even laymen associate this disorder with childhood trauma, and parents are naturally the first to be suspected. So are the asspats worth throwing your relationship with your parents under the bus? There are plenty of bad parents, but the level of abuse it would take to produce multiple identities (not talking about mild dissociation) goes way beyond getting grounded or yelled at.
 

Behavioral Sink

kiwifarms.net
I've noticed in cases of legitimate illnesses, that the private (ie, for-profit) medical system in the US differs from the publicly-funded system in Canada. Private medicine systemically drifts toward over-treating, while public medicine drifts toward under-treating.

The best example I can think of, is reading about American Alzheimer's patients being given feeding tubes. (www.nytimes.com/2016/08/30/health/tube-feeding-dementia-patients.amp.html) It's a practice that's falling out of favour, but was never something I encountered in Canadian practice.

There also seems to be an anecdotal difference in how aggressively hyperemesis of pregnancy gets treated in the two countries. In Canada, you can be admitted to hospital for IV meds and fluids if necessary. But in the US, there appears to be a lot more provision for at-home use of IV fluids and medication pumps, and home health services to support it as a standard practice.

So this leads me to my question for more avid munchie-watchers: Are there any Canadian munchies doing the POTS/saline/ports business? I just can't see the public health system indulging these folks in the manner they seem to be accommodated by the more profit-friendly medical model of the US.
 

flatlandbasin

kiwifarms.net
Hello. I have been watching this case for awhile so now I present it to you. It sits at the intersection of Munchausen by proxy, Munichausen by internet by proxy, homeschooling advocates and now, the most socially conservative state senator in the entire state of Texas. If this doesn't belong here, tell me to fuck right off and I will.

Meet the Pardo family: Mom Ashley, dad Daniel, son and daughter names unknown, and the littlest squirg there is named Kaleb Drake Pardo, most usually called Drake.

Pardo-Family_3-2-1280x853.jpg


On June 20, 2019 Drake was seized from his home in rural Kaufman county, East Texas by child protective services. What ensued was a lengthy custody battle that made its way all the way to the supreme court of Texas, and got many parties involved.

I think the best way to lay this out is in chronological order.

12/24/09- Ashley Pardo was not yet married to her second partner Daniel, Drake’s father. She had one child and was pregnant with the other. Kaufman County Sheriff received a call at 11:59 p.m. about a domestic disturbance. Ashley claimed her first husband, Chad Patrick Ganon, now estranged, had violated a protection order and arrived at her house, engaging in an altercation, possibly about Christmas presents. Her first husband allegedly “started callirig [sic] Ashley Pardo names and then threw her on the bed, punched her pregnant stomach and grabbed her by the neck.” Pardo then grabbed the phone and hit redial, which called her maternal grandmother, who then called police. Pardo told police her eldest child was asleep in the next room, and was not injured or otherwise harmed. Pardo told responding officers she had “two heart conditions and in high risk pregnancy” and furthermore told them she “was pregnant with twins in the past and lost them, but... does not know how they died.” Ganon was arrested for violating a two-year protective order and taken to jail, where he later made bond and was released. The officer who made the report stated they “believe[d] that chances are Ashley Pardo will allow Chad Patrick Ganon back in the home as she has in the past.” Ashley was taken to hospital and “it was determined that Ashley Pardo's unborn child was ok.” CPS investigation at that time was not able to determine if the oldest child was neglectfully supervised or physically abused, and the oldest child remained in the home.

6/2/10- Gannon apparently returned to live with Pardo and the children despite the protective order being in effect until August of that year. KCSO received several calls that Gannon was back in the home with Pardo, and drove by to take a look. Gannon's truck was present in the driveway and there were “tools spread out everywhere like someone is working on the truck.” Pardo would neither admit nor deny that Gannon was living there, and would not let anyone inside the home without a search warrant. Without cause for a search warrant, KCSO deputies could not enter. Pardo told deputies she was trying to get the protection order dropped. CPS investigation at that time ruled out neglectful supervision or physical abuse of the eldest child.

5/23/14- Ashley Pardo and Gannon had broken up, and Gannon had allegedly terminated his parental rights. Ashley remarried Daniel Pardo, but had not yet given birth to Drake. KCSO reported that Ashley ‘repeatedly called law enforcement stating that Chad Patrick Gannon is following [her].” When stopped by law enforcement, Gannon stated, "I just showed up and she was here." Ashley obtained a new protective order against Gannon, partially due to the fact she alleged Gannon stated he was going to kill her two children. CPS administratively closed the case. At this time, Gannon had one conviction for criminal trespass and Ashley had one conviction stemming from theft of property.

2015 (date unknown)- Drake Pardo is born. His birthdate is redacted in official documents, but he is 4 years old in 2019. Of note: his name was also redacted in official documents, it’s Ashley and Daniel who went public with his name.

6/15- Drake Pardo begins seeing gastrointestinal doctors at UT Southwestern Medical. For posterity, this is approximately a 40 min drive from Kaufman and not the closest medical facility but highly ranked. Ashley reported to doctors that Drake was not feeding properly. At that time Drake was diagnosed with reflux and possible m!ilk protein allergy and was given special formula and reflux medications.

10/15- Drake was again seen with GI as Ashley reported “poor feeding and latch.” A frenulectomy was performed (that portion of skin/muscle under the tongue… they snip it).

11/16- Ashley asks a different provider for an evaluation of autism based on a self-reported prior autism screening.

7/17- UT Southwestern’s neurodevelopmental clinic sees Drake regarding autism. The provider recommended Ashley follow up with a full autism evaluation, and did not diagnose Drake with autism at that time. However, the provider did start Drake on seizure medication Trileptal “for behavior modification in the interim.”

8/17- Ashley took Drake to a geneticist for genetic screening, specifically fragile X syndrome as well as other chromosomal variations. Some minor variations were found which can result in congenital structural abnormalities of the heart. When provided with the results of these tests, Ashley allegedly “was surprised that the results were normal and called the clinic again later to be reassured again that the results were normal.”

Also 8/17- Ashley had an MRI done on Drake for further evaluation of developmental concerns. The MRI showed mild Chiari malformation, but the neurologist did not think this would cause any symptoms and did not refer Drake to neurosurgery. However, Ashley also reported Drake as having absence seizures. An EEG was done and was normal, and the neurologist increased Drake’s Trileptal dose. Ashley remained concerned about the MRI, so at that time she was referred to neurosurgery.

10/17- The neurosurgeon requested additional imaging and also a sleep study based on Ashley’s report of poor sleep.

11/17- A cardiac evaluation showed no structural heart defects. The sleep study showed both central and obstructive sleep apnea.

12/17- Ashley requested a swallow test which showed some slow movement of liquid in the mouth. Doctors recommended Ashley add thickener to Drake’s formula, and recommended speech therapy. Ashley also had Drake seen by a GI doctor, and reported Drake had epilepsy despite the fact that he had never been diagnosed with epilepsy.

1/18- Ashley told doctors she was concerned about Drake having Ehlers-Danlos syndrome, and reported that he had several symptoms. “Per medical records, mom has described to many physicians that [Drake] might have this syndrome and he is hypermobile.” She requested more thickening agent from the GI doctor “because she was making his formula more thick than was suggested” per what she reported was the advice of the speech therapist. She also called the neurology team and reported that Drake had now become postictal (sleepy after seizures).

2/18- Drake had a 24-hour EEG and everything was normal. “Mother was not reassured by this and asked to be seen in the epilepsy clinic.”

3/18- Drake had decompression surgery to fix the Chiari malformation. Surgeons felt the procedure went well and was healing well. “After the surgery, mother was concerned that his wound was infected and that his behaviors were worse.”

4/18- Drake was seen by allergy and immunology because Ashley reported concerns about immune system and “peeling skin on his hands.” Drake was also seen in neurology, and doctors recommended weaning off to Trileptal as it was not indicated. “Initially, mother was hesitant but she subsequently did agree.”

4/18 (approximately)- Ashley took Drake to a cerebral palsy doctor.

5/18- Ashley reports that Drake is “unable to control his temperature.” She reported his appetite had increased once off Trileptal.

7/18- A follow-up sleep study shows that both central and obstructive sleep apnea have resolved.

8/18- Ashley reports that Drake may have had an atonic seizure, and told UT Southwestern that the cerebral palsy doctor believed Drake may have dysautonomia. The doctor told Ashley to monitor Drake’s pulse and oxygen at home. The doctor also started clonazepam “as a behavior modifying drug.” Drake had another EEG, this time a four-hour one, that came back normal again.

9/18- Ashley reported to the neurodevelopmental clinic that Drake was becoming more aggressive. Doctors discussed with her getting Drake off clonazepam, but Ashley reported the cerebral palsy doctor did not want that as other alternatives could worsen dysautonomia. That same month she emailed the cardiology team about concerns about seizures and sleep apnea, and reported changes in Drake’s vital signs via at-home monitoring.

10/18- Drake had another normal sleep study. “Despite being told that the study was normal, mother emailed the clinic soon after asking about a specific event overnight She was again reassured that the moment of awakening was not associated with any vital sign or EEG changes and was just a cough.” Ashley reported symptoms of restless leg syndrome and Drake was prescribed medication for that. Ashley remained concerned about Drake’s heart, so another 30-day EEG was ordered. It came back normal.

At some point in the fall of 2018, Drake was provided a wheelchair by his CP doctor, reportedly because he tires easily.

1/19- Ashley reported that Drake finds that his formula tastes funny, and he was changed to Neocate Splash.

2/19- Ashley reported to the GP that Drake was having trouble drinking from a sippy cup and was refusing all solids. Another swallow study was given, and was normal except for some reflux.

3/19- GI doc set up a virtual visit with a nutritionist.

4/19- Ashley reported that Drake was not taking anything by mouth. She started asking about a g-tube. She reported that Drake was diagnosed with aspiration pneumonia by his paediatrician, and he was admitted to hospital. Hospital doctors diagnosed Drake with a viral lung infection, not aspiration pneumonia. Ashley fired Drake’s paediatrician and asked to be seen by a new GI doctor. While in hospital, when Drake was directed to eat or drink he “did so without problem.”

In addition, when working with therapists, he seemed fine moving about with his braces for his leg. The wheelchair was not needed in fact the medical records describe that he was running around in the room prior to his discharge. (I guess at some point he had been prescribed AFOs for being pigeon-toed? This appears later in the CPS documents but I can’t find where it fits in the timeline).

When the treatment team approached the Pardo family with concerns about Drake’s maladies being overstated, Ashley reportedly became upset and asked to leave the facility. The hospital wanted to keep Drake for inpatient feeding therapy, specifically because Ashley was asking for a g-tube. The family allegedly declined, citing “distance from the home and responsibility to care for other children as dad works long hours.” Ashley allegedly mentioned to the medical team that Drake eats better when his father, Daniel, feeds him.

Doctors reported Drake has no gross motor concerns for age as he is able to walk and jump easily. He has no fine motor concerns as he is able to put on socks. He seemed to know colors and numbers pitting him on track cognitively. He does have some speech delay that would require speech therapy, which had previously been recommended to Ashley.

5/19- Drake’s final admittance to the hospital before being removed. Ashley reported him as NPO and he was given an ng tube for feeding. The hospital again wanted to keep him for inpatient feeding therapy, but the family again declined. Ashley told the new GI doctor that Drake needed a g-tube.

Doctors stated “It seems that he has suddenly developed an inability to eat. This doesn't appear to be related to a medical cause.” Drake had never been dehydrated, underweight, or even lost weight. At this point, doctors contacted Dr. Suzanne Dakil, a paediatrician and specialist in medical child abuse. After reviewing the case and related medical files, Dr. Dakil determined Ashley was submitting Drake to medical child abuse (note: she did not have a finding of Munchausen by proxy because such a diagnosis requires the doctor to hold a finding of a psychological etiology). Dr. Dakil noted Drake needed more workups before a g-tube was placed.

6/6/19- At this point, the case is referred by the hospital to CPS. CPS investigator Tabitha Sims attempts to make contact with the family on 6/7/19. Sims testified in court that she “went to the home, knocked on the door, and when no one answered, she left her business card.” Sims says that several hours later, she received a call from Ashley. Ashley allegedly agreed to meet with Sims on 6/10/19. The meeting never occurred.

6/7/19- Dakil told Sims to notify the family she wanted them to bring Drake to the hospital on 6/10/19 to be admitted for feeding observation. Sims was unable to notify the family as they would not take her calls and skipped their meeting with her.

6/11/19- Sims stated she received two emails, one from family advocate Krista McIntire and one from homeschool attorney Chris Branson (the Pardos homeschool all of their kids). McIntire stated “the family was not going to meet with her [Sims] unless she [McIntire] was present.” Sims says she received a text from Pardo asking if she had received McIntire’s email. Branson allegedly cancelled the meeting and prohibited CPS from communicating directly with the Pardos. Sims testified that Branson would not allow the Pardos to meet with Sims unless she discussed the allegations with him, which she told him by law she is not allowed to do over the phone. She says she offered to meet with him in person, but he declined. She characterized him as “very hostile” and said he demanded her supervisor’s name and number and told her “to cut the games.” She told the court she gave him her supervisor’s name and number. Ms. Sims again requested to meet with the family.

6/11/19-6/18/19- Given that the family did not bring Drake to the hospital as Dakil recommended, Sims determined Drake was in danger given that “if we didn’t have access to the child, that if we couldn’t work with the family, we couldn’t assure that [Drake] did or did not get a feeding tube appropriately.” Dakil stated in court she was concerned the Pardos “would put in a [G-tube] in this kid without adequate evaluation.” This was based on conversations the Pardos allegedly had with hospital staff at Drake’s last hospitalization, that “they wanted the G-tube, and their next step would be to find another place to do that.” Dakil said she believed the Pardos “could have gone to another facility and gotten the G-tube within a span of a couple of weeks” as they had already gone to more than one facility in pursuit of a Chiari surgery.

6/20/19- Drake was removed from the Pardo home. Sims related that the only information she had been able to gather about the child prior to the child entering the Department’s care came from the social media posts. (Note: I cannot find their social media accounts now, it looks like they’ve been scrubbed). The social media posts allegedly referred to Drake as a “special needs child” and a “medically fragile child.” Sims told the court she was surprised to find Drake ambulating without a wheelchair and that he was also running, talking and playing. Although the Pardos handed over Drake, they did not allow Sims in their home or in Drake’s room.

A video posted on social media and later shared by several pro-homeschool groups shows Drake asking if his dad can come with him to the hospital.

While in the car on the way to the hospital, Drake allegedly saw Sims and her co-worker eating chips and M&Ms and drinking a soft drink and asked if he could have some stating he was “hungry and thirsty.” They told him no as he was not medically cleared to eat based on the symptoms his mother had reported.

When he arrived at the hospital and was medically cleared to eat and drink by mouth, doctors reported that he began to do so “immediately.” Doctors stated he had no problem eating or drinking, and liked “spaghetti and crispy French fries, but will eat ‘most everything off our [the hospital] menu.’” Drake’s weight actually decreased while hospitalized, as doctors found he was “overfed” via the ng tube and had to figure out how to eat when he was hungry. Doctors reported they were not concerned about this weight loss. Doctors were of the opinion that Drake did not need a g-tube.

While hospitalized, Drake jumped, danced, played and did not seem to need a wheelchair or AFOs. They reported he did not seem to tire easily.

While hospitalized, doctors determined Drake had not been potty-trained. Daniel testified in court that as far as potty training, Drake was “very behind on his milestones” and was still wearing diapers. Drake had no problem using the toilet while hospitalized, which Daniel and Ashley were “very surprised” to learn.

6/27/19- The Pardos appeal the decision to take Drake from their home, and he’s assigned a guardian ad litem. The ad litem tries to call a meeting to determine if Drake could return home between the 5 doctors treating Drake and his parents in an effort to have a “back and forth dialogue to understand what the family’s perception of Drake was versus our perception, the hospital, and how we could come to an agreement about moving forward with Drake.” At the direction of their attorney, the Pardos did not speak at this meeting, and so the guardian was unable to determine if Drake could return home.

Throughout the summer, the case wound its way through the appellate courts. Ashley and Daniel filled out the necessary paperwork to have Drake placed back in their home, and also provided three alternative placements. All three were individuals Ashley met in an online support group for parents of medically fragile children and had never met the Pardos in person. CPS was only able to get in touch with two of them, the third never returned calls.

The appellate court found that there was a continued risk for medical child abuse, and was looking to possibly place Drake with family.

At this point, the case goddamn EXPLODES on social media and on the internet.

The Texas Homeschool Coalition which is actually a pretty powerful political group in the region, started posting about it calling it “illegal removal” of Drake. They were under the impression that Drake was taken away because the Pardos complained about poor medical care Drake was receiving.

This guy who honestly, I just want to chew his eyebrows off: https://www.facebook.com/watch/?ref=external&v=2733042073391588

For real though his name is Jeremy Newman and he’s their director of public policy. Newman says it became “abundantly clear” that doctors had not read all of Drake’s medical files and that’s why “this one doctor” believed the parents might have been exaggerating claims of sickness.

CPS had the gall to “dig in their heels” and didn’t want to send Drake home with his parents. “CPS clearly broke the law” Newman says, because he claims the hospital was “surprised” and that there was no medical emergency. This vid’s got 15k views.

And who was involved all this time but Sen. Bob Hall, R-Edgewood. He sat through the case in the very beginning. In his cute lil’ newsletter he sends out (in one of which he compared trans gender reassignment surgeries to Nazi doctors) he posits that probably the ad litem guardian, who also works for adoption agencies, was probably trying to get Drake removed so she could adopt him out to someone. Because that’s how that works.

Hall took out Facebook ads about the case. Here it is, with subtle notes of xenophobia:
Screen Shot 2019-12-04 at 10.10.56 PM.png


The social media got to be so much that Kaufman County’s district judge Mike Chitty put a gag order to keep anyone from discussing the case (probably given that it was a 4-year-old).

“CPS wanted the mother to admit that she had mental problems and the father to agree that the mother’s mental problems were serious,” Hall said, and CPS even dared to ask the judge that Hall not be included in this case. “The gasp in the courtroom was quite loud and even the judge had a look of shock on her face,” Hall wrote. #thathappened

The Texas Supreme Court dropped the case in October, and Kaufman County dropped the case today, so Newman says the case is “effectively over.” The Pardos got help from a group called Family Rights Advocacy and the Parental Guidance Center, both of which are basically anti-CPS.

“God has made sure we were special,” Ashley says in this video:
Screen Shot 2019-12-04 at 9.56.40 PM.png


They were reunited with Drake, but “the trauma lasts,” Newman says.

Yes, I think it probably does, but not like Newman thinks.

So there you have it. The Pardo case. A story with all the ingredients we love to love/hate.
 
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Foxcube

kiwifarms.net
I've noticed in cases of legitimate illnesses, that the private (ie, for-profit) medical system in the US differs from the publicly-funded system in Canada. Private medicine systemically drifts toward over-treating, while public medicine drifts toward under-treating.

The best example I can think of, is reading about American Alzheimer's patients being given feeding tubes. (www.nytimes.com/2016/08/30/health/tube-feeding-dementia-patients.amp.html) It's a practice that's falling out of favour, but was never something I encountered in Canadian practice.

There also seems to be an anecdotal difference in how aggressively hyperemesis of pregnancy gets treated in the two countries. In Canada, you can be admitted to hospital for IV meds and fluids if necessary. But in the US, there appears to be a lot more provision for at-home use of IV fluids and medication pumps, and home health services to support it as a standard practice.

So this leads me to my question for more avid munchie-watchers: Are there any Canadian munchies doing the POTS/saline/ports business? I just can't see the public health system indulging these folks in the manner they seem to be accommodated by the more profit-friendly medical model of the US.
There's a Canadian munchie who somehow got doctors to give her blood transfusions. She would go to blood donation centers and bring cookies to get attention for being so grateful. I can't remember her name right now I think it's Kelly or something.
 

flatlandbasin

kiwifarms.net
Is Texas one of the only states with these child abuse doctors? Is that why they have so many of these cases?
As far as I know, several US states have MD's who are child abuse and neglect specialists. They usually are paediatricians who received specialized training and sit on hospital ethics boards. Hospitals have formed ethics boards to help protect themselves in murky situations that sometimes arise in healthcare. For example, a famous case in Wisconsin where parents were charged in the death of their daughter from untreated diabetes. The child abuse/neglect specialist in that case is named Dr. Norman Fost. https://www.nytimes.com/2009/10/08/us/08sentence.html
 

a bootiful jung woman

Checkmate, I WHISPER
kiwifarms.net

Punkinsplice

My dog and I talk shit about you
kiwifarms.net
Bethany has a tube infection, and of course is having a reaction to the antibiotics. But she looks pleased. As if this some proof every doctor traumatized and abused her.
View attachment 1037935

Ellen, if a person has had 14 surgeries with the same surgeon... RUN. And fluffy ear muffs, because your 3.
View attachment 1037936
View attachment 1037937
Fuck me. Both have matching neck and wrist braces? JFC. And she still has that painful looking grin.
Edit: my bad, those are tubes with matching stoppers. Fuck my eyes!
 

large_farva

kiwifarms.net
Ashley and Daniel filled out the necessary paperwork to have Drake placed back in their home, and also provided three alternative placements. All three were individuals Ashley met in an online support group for parents of medically fragile children and had never met the Pardos in person. CPS was only able to get in touch with two of them, the third never returned calls.
Gross mismanagement if CPS already stated by that point that medical abuse was not only suspected but there was also a positive separation test (the kid was fine at the hospital). Severely fucked system to allow the kid to return to the parents and for mom to be allowed to suggest any alternative placements.

It sounds like the defense is that since the child was fine at the hospital, there was no need for removal and that's fucked.

I'd like to see a thread on this.
 

Port Selfie

kiwifarms.net
I won't go on and on about this because school was so fucking annoying I don't need to subject all you to this, so I'll quickly answer these questions.

Don’t they usually claim it has something to do with EDS? Is that a thing?
I mean yes and no. Have slower gastric emptying times been documented in EDS patients? Yes. Are these cases so severe that a tube or TNP is required? Only if you're a munchie. It's not fully understood, why these conditions seem to be comorbid, but muchie's claiming EDS/POTS/GP/MCAS combo certainly don't help us gain an understanding of the true statistics.

I also wonder why they all go for the classic POTS, EDS, MCAS trio (or take one out and add GP, or just add GP and ten other Munchie faves). Yes, I understand they're easier to fake than many other diagnoses, but the fact that even beginner Munchie watchers everywhere roll their eyes at the mere mention of 'POTS, EDS and MCAS' doesn't worry them? Are doctors somehow completely unaware that this is the Munchie trio de jour?
Because they want to out sick one another, and there are no definitive tests to rule them out. Doctors know it's the munchie combo, but some people really do have these conditions. Every time a POTS patient rolls in the ER we all roll our eyes, because somehow they still feel like shit after a bag a fluid and NEED 24hr obs and we're the incompetent assholes.

That's what I don't get. Why do doctors (I know it's not just the states but I'll say usa) in the usa give them things such as TPN when it's a last resort. It's a serious, fucking serious thing... And it's so obvious that none of these idiots have GP... I always assumed it was because of the fact you basically pay your way there when it comes to health care. Surely that many doctors aren't believing this shit?
I can think of only 2 reasons somebody could be getting TPN for GP when they don't have GP. One they are anorexic, and their weight is so low they made themselves actually sick. (i.e. Tina/Anelise) People in the USA are so sue happy, that if a patient dies and their was an additional treatment that could have been offered, that wasn't everybody involved in that patients care is pulled into a lawsuit. Why do you think we can spend up to 2 hours performing CPR and giving meds to added person? Two, they are obese, whiny, persistent, and perhaps willing to pay. I'll never understand docs who give TPN to them, but maybe that's why I don't drive a porsche.

Thus concludes my bitching. I'll return to lurking.
 
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howmanypizzas69

kiwifarms.net
I won't go on and on about this because school was so fucking annoying I don't need to subject all you to this, so I'll quickly answer these questions.



I mean yes and no. Have slower gastric emptying times been documented in EDS patients? Yes. Are these cases so severe that a tube or TNP is required? Only if you're a munchie. It's not fully understood, why these conditions seem to be comorbid, but muchie's claiming EDS/POTS/GP/MCAS combo certainly don't help us gain an understanding of the true statistics.

.
Yeah that’s what I figured. Taking the most serious rare case of something and then making that seem normal and expected is pretty much MBI 101. The number of shitty local news station “inspirational” articles about “local teen suffers from debilitating disease but still fights on!” that include something along the lines of “she suffers from POTS, a SERIOUS condition that can leave sufferers bed ridden, wheelchair bound...OR WORSE” is too damn high.

They’re gonna scare a whole generation of teenage girls into thinking they need a wheelchair for their terminal hitchhikers thumb
 
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XMR: 438fUMciiahbYemDyww6afT1atgqK3tSTX25SEmYknpmenTR6wvXDMeco1ThX2E8gBQgm9eKd1KAtEQvKzNMFrmjJJpiino