Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

TheCakeIsALie

kiwifarms.net
I always wonder if the deaf do not like improvement in hearing because they can get government money instead of working?

Being deaf doesn't automatically get you benefits. There are different degrees of it. The SSA requires deafness where you cant hear more than 90 db because that would eliminate work requiring communicating with the public or over the telephone or radio, or jobs that require the operation of hazardous machinery.

But a deaf person may be able to do something else like a chat support agent.
 

Android raptor

"an honest-to-God BPD womanchild misanthrope"
kiwifarms.net
Being deaf doesn't automatically get you benefits. There are different degrees of it. The SSA requires deafness where you cant hear more than 90 db because that would eliminate work requiring communicating with the public or over the telephone or radio, or jobs that require the operation of hazardous machinery.

But a deaf person may be able to do something else like a chat support agent.
Yeah, I know it's actually pretty difficult to get tug at least where I'm at. Not surprised about that at all, I think i'd be more surprised if they just easily gave tug to anyone HOH.

Even for potato parents it's probably easier to grift online than trying to wrangle gov gibs (not that plenty of them haven't managed to secure them, it just takes some work even with a seriously disabled kid).
 

Bubblez McGee

I like liquor and whores
kiwifarms.net
I wrote about Dan Seitz in this thread a few months ago. He's a youtube vlogger with a 10 year old daughter named Hudsyn, who sustained catastrophic brain damage when she was born because his wife Casey suffered a placental abruption during labor. It's likely that the damage was exacerbated because he and his wife chose a home birth and Casey labored at home for around 24 hours before going to the hospital. This delayed detection of the abruption and caused Hudsyn to be deprived of oxygen for an extended period of time.
In this video, Dan films Hudsyn while she has a water or "swim therapy" session. Although he titled the video "Water Therapy" he does refer to it as swim therapy through out the video and has used that term in the past. While swim therapy normally what it's called, poor Hudsyn is so damaged that she cannot move a muscle on her own and so nothing resembling "swimming" is actually happens . The therapist just holds the Hudsyn in the water while moving her limbs and changing her positions.

While swim therapy can often be helpful for building muscle and allowing injured and brain damaged people to regain some mobility, because Hudsyn hardly moves, it's likely that the therapy does her little to no good at all. At best it might provide some minor, temporary physical relief if she is in pain from high muscle tone and that is only a maybe.

I tried to start the video at the beginning of the therapy session but it looks like it's just starting from the beginning of the video, so if you dont want to see Dan talking and driving for 7 minutes, just skip to 7:01 in the video.

 
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shoplifter7

kiwifarms.net
BTW, he also sells merchandise, of course.
and has his son wear it to school, on his face 😷

looking at the video where she is screaming a lot while the dad holds her, she is acting just like an overtired newborn. she likes fetal position. can they not put her in a dark quiet room to sleep? is she allowed a pacifier (idk if she has sucking reflex)? i think she is just a permanent baby.
 
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Bubblez McGee

I like liquor and whores
kiwifarms.net
and has his son wear it to school, on his face 😷

looking at the video where she is screaming a lot while the dad holds her, she is acting just like an overtired newborn. she likes fetal position. can they not put her in a dark quiet room to sleep? is she allowed a pacifier (idk if she has sucking reflex)? i think she is just a permanent baby.
She's fed via a g tube, although she did eat and nurse a little bit when she was a baby, she had issues that necessitated the tube, so she no longer gets any nutrition by mouth, but she might still have a suckling reflex. However, her screaming seems to be because of severe pain and discomfort, rather than lack of sleep or anxiety, so a pacifier or dark room probably would not help in this case. I believe at least some of her pain issues are caused by her extremely high muscle tone, which is common among brain injured individuals. It might not seem like something like that would be all that painful, but if you want to get an idea of how uncomfortable it is, flex your muscles as hard as you can and hold them that way for as long as you can. Now imagine never being able to voluntarily relax your muscles.
She's given drugs to lower her tone, but they dont always work and with as much brain damage as she has, there might be other issues causing her problems and because she is completely non verbal, it's impossible for her to communicate what's bothering, so her parents and caretakers more or less have to guess.

It's a real shame because unlike many other damaged babies, her circumstances weren't caused by genetic issues, but by a birth injury that might have been caught earlier if her mother had gone to the hospital when she went into labor, instead of laboring at home under the care of a doula for almost a full day.
 

shoplifter7

kiwifarms.net
She's fed via a g tube, although she did eat and nurse a little bit when she was a baby, she had issues that necessitated the tube, so she no longer gets any nutrition by mouth, but she might still have a suckling reflex. However, her screaming seems to be because of severe pain and discomfort, rather than lack of sleep or anxiety, so a pacifier or dark room probably would not help in this case. I believe at least some of her pain issues are caused by her extremely high muscle tone, which is common among brain injured individuals. It might not seem like something like that would be all that painful, but if you want to get an idea of how uncomfortable it is, flex your muscles as hard as you can and hold them that way for as long as you can. Now imagine never being able to voluntarily relax your muscles.
She's given drugs to lower her tone, but they dont always work and with as much brain damage as she has, there might be other issues causing her problems and because she is completely non verbal, it's impossible for her to communicate what's bothering, so her parents and caretakers more or less have to guess.

It's a real shame because unlike many other damaged babies, her circumstances weren't caused by genetic issues, but by a birth injury that might have been caught earlier if her mother had gone to the hospital when she went into labor, instead of laboring at home under the care of a doula for almost a full day.
I just wanted to give my point of view on the last part, about her laboring so long at home; I don't know whether they deserve blame for that because a lot of times pregnant women are told to stay home until their water breaks or something, sometimes they aren't taken seriously, sometimes nurses don't believe they really are in labor. It is very normal to stay home when you are in labor, unlike what is shown in media, and sometimes women dont even know that they are in labor. I think they just got very very unlucky. BUT. I do think the dad is kind of a dick / stupid, especially after the video of the daughter having a seizure on stage... either way, I don't know what I'd do in their situation.
 

MirnaMinkoff

Mama, nobody sends you a turd and expects to live.
True & Honest Fan
kiwifarms.net
I wrote about Dan Seitz in this thread a few months ago. He's a youtube vlogger with a 10 year old daughter named Hudsyn, who sustained catastrophic brain damage when she was born because his wife Casey suffered a placental abruption during labor. It's likely that the damage was exacerbated because he and his wife chose a home birth and Casey labored at home for around 24 hours before going to the hospital. This delayed detection of the abruption and caused Hudsyn to be deprived of oxygen for an extended period of time.
In this video, Dan films Hudsyn while she has a water or "swim therapy" session. Although he titled the video "Water Therapy" he does refer to it as swim therapy through out the video and has used that term in the past. While swim therapy normally what it's called, poor Hudsyn is so damaged that she cannot move a muscle on her own and so nothing resembling "swimming" is actually happens . The therapist just holds the Hudsyn in the water while moving her limbs and changing her positions.

While swim therapy can often be helpful for building muscle and allowing injured and brain damaged people to regain some mobility, because Hudsyn hardly moves, it's likely that the therapy does her little to no good at all. At best it might provide some minor, temporary physical relief if she is in pain from high muscle tone and that is only a maybe.

I tried to start the video at the beginning of the therapy session but it looks like it's just starting from the beginning of the video, so if you dont want to see Dan talking and driving for 7 minutes, just skip to 7:01 in the video.

They tend to sort of gloss over the labor/birth story stuff. I’ve never heard of a doula being at someone’s home for anything other than a homebirth.

In hospital birth situations the doula meets a mother at the hospital to start assisting with labor there, not for hours before at home.

I’d assume this is because it was a home birth situation that went bad but he doesn’t want blowback on the issue. Hospitals usually notice placental abruptions fast unless there’s some real negligence afoot. Usually the fetal heartbeat shows distress and that’s the first red flag, then the physical exam finding the blood.
I just wanted to give my point of view on the last part, about her laboring so long at home; I don't know whether they deserve blame for that because a lot of times pregnant women are told to stay home until their water breaks or something, sometimes they aren't taken seriously, sometimes nurses don't believe they really are in labor. It is very normal to stay home when you are in labor, unlike what is shown in media, and sometimes women dont even know that they are in labor. I think they just got very very unlucky. BUT. I do think the dad is kind of a dick / stupid, especially after the video of the daughter having a seizure on stage... either way, I don't know what I'd do in their situation.
This is true but the only thing that sets off my alarm bells is the doula being at the house all day during labor. Maybe things are different other places but in my experience doulas meet you at the hospital. I’m only familiar with a doula being at a home during labor for home births. Most doulas only want to be present for active labor, spending a day at the home is odd. Doulas needs to be prepared help during active labor/birth so don’t waste their energy hanging around for early labor.
 

MirnaMinkoff

Mama, nobody sends you a turd and expects to live.
True & Honest Fan
kiwifarms.net
It is possible to have a “silent” placental abruption, although they are more unusual. The blood is trapped between the placenta and the uterine wall, and doesn’t hemorrhage out, so it’s often not discovered until it’s too late. Scary shit.
Well, fetal monitors at the hospital would have picked up fetal distress if it was a silent abruption. Once an abruption happens the fetal heart are fluctuates wildly due to distress. I get the idea they hooked her up to monitors, noticed signs of distress, did physical exam and discovered the abruption (bloody glove he mentioned) then immediate emergency c-section.

It’s a sad situation. The only weird aspect is the doula being at the house with them. Had the doula never been mentioned I would have just assumed she was laboring at home normally and went to the hospital when they thought labor had appropriately progressed far enough to go.

The question is only if they were trying to deliver at home and realized there was a problem after 24 hours, or it was just a matter of waiting for active labor to head to hospital. It’s just odd that the doula didn’t bother to do a physical exam at their home that defected the abruption. I thought doulas did stuff like that? Why is she there if not for that type of thing? One good pelvic exam by the doula would have revealed the same thing the nurse found - blood - and it being detected earlier could have made a significant difference in outcome.
 

Anne Hyroe

ortho molecular aware patriotic princess
kiwifarms.net
The question is only if they were trying to deliver at home and realized there was a problem after 24 hours, or it was just a matter of waiting for active labor to head to hospital. It’s just odd that the doula didn’t bother to do a physical exam at their home that defected the abruption. I thought doulas did stuff like that? Why is she there if not for that type of thing? One good pelvic exam by the doula would have revealed the same thing the nurse found - blood - and it being detected earlier could have made a significant difference in outcome.
I’m not sure how it is in the States but a doula would not be permitted to do any sort of examination here. They are strictly for emotional support and complementary therapies. Anyone other than a midwife or doctor who attends the birth (in the clinical sense) is liable to prosecution and fines. If they chose to have a home birth with only a doula then social services would probably consider it a safeguarding risk for the baby and the doula would be prosecuted (and lose their professional insurance and registration if they trained through one of the main groups). I’ve dealt with freebirthers before and they are, without exception, absolutely delusional.
 

MirnaMinkoff

Mama, nobody sends you a turd and expects to live.
True & Honest Fan
kiwifarms.net
I’m not sure how it is in the States but a doula would not be permitted to do any sort of examination here. They are strictly for emotional support and complementary therapies. Anyone other than a midwife or doctor who attends the birth (in the clinical sense) is liable to prosecution and fines. If they chose to have a home birth with only a doula then social services would probably consider it a safeguarding risk for the baby and the doula would be prosecuted (and lose their professional insurance and registration if they trained through one of the main groups). I’ve dealt with freebirthers before and they are, without exception, absolutely delusional.
You’re right, I looked up the official duties of a doula. They are pretty much the emotional support animals of childbirth. They do not provide any medical care and are just trained labor coaches. Still not sure why a doula would go to the house instead of meet at the hospital.

Until recently I would have assumed someone planning a homebirth would have a midwife in attendance. The shitshow with Robyn/Luna demonstrated finding a doula on IG and a hot tub is good enough for some loons.
 

Bubblez McGee

I like liquor and whores
kiwifarms.net
They tend to sort of gloss over the labor/birth story stuff. I’ve never heard of a doula being at someone’s home for anything other than a homebirth.

In hospital birth situations the doula meets a mother at the hospital to start assisting with labor there, not for hours before at home.

I’d assume this is because it was a home birth situation that went bad but he doesn’t want blowback on the issue. Hospitals usually notice placental abruptions fast unless there’s some real negligence afoot. Usually the fetal heartbeat shows distress and that’s the first red flag, then the physical exam finding the blood.

This is true but the only thing that sets off my alarm bells is the doula being at the house all day during labor. Maybe things are different other places but in my experience doulas meet you at the hospital. I’m only familiar with a doula being at a home during labor for home births. Most doulas only want to be present for active labor, spending a day at the home is odd. Doulas needs to be prepared help during active labor/birth so don’t waste their energy hanging around for early labor.
That's what got me. Dan said that Casey labored at home for about 24 hours until the Doula suggested they should go to the hospital. Although he never mentioned a home birth specifically, the casual mention of the Doula in the home made it sound as if they were planning a home birth the entire time and only when the labor wasn't progressing as normal did the doula suggest moving to the hospital. I could be wrong and they might have just had doula there for support, but just the way he said it sounded odd, as if he was intentionally leaving out or glossing over something he knew would make him and his wife look bad.
 

Thomas Eugene Paris

Sexy, in a Howdy Doody sort of way.
kiwifarms.net
I just wanted to give my point of view on the last part, about her laboring so long at home; I don't know whether they deserve blame for that because a lot of times pregnant women are told to stay home until their water breaks or something, sometimes they aren't taken seriously, sometimes nurses don't believe they really are in labor. It is very normal to stay home when you are in labor, unlike what is shown in media, and sometimes women dont even know that they are in labor. I think they just got very very unlucky. BUT. I do think the dad is kind of a dick / stupid, especially after the video of the daughter having a seizure on stage... either way, I don't know what I'd do in their situation.
...I'm pretty sure there's no way she didn't know that something was very seriously wrong. Placental abruption causes hemorrhage. There would have been a lot of blood. Any normal person would seek medical attention immediately, even if they weren't sure if they were in labor. Plus, for it to have happened after 24+ hours of nonproductive labor indicates that the mother and the doula both had to have SOME inkling that things were already not going right.

It's nice of you to absolve the mom in this situation, I guess, but I don't think she deserves it. There is zero chance she didn't know something was amiss, but she wanted that home birth more than she cared about a healthy baby. Yes, most of the time, a profoundly disabled child isn't anyone's fault. Severe birth injury can happen even in a hospital, and even in a hospital setting, placental abruption is an extreme medical emergency for both mother and fetus. This woman, however, chose to stay home for hours, and now her kid is paying for it.

Robyn Grogitsky-Ramirez, aka "The Empathic Nutritionist", is similar. She put her own desires and ego first, had a home birth that went bad, and now her daughter Luna is full potato and going to die. At least the end to her suffering is in sight; poor Hudsyn has been existing in agony for YEARS. I don't know how any parent can listen to a child scream like she does and think, "oh yeah, better get the camera lolz!"
 

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