Trainwreck The Empathic Nutritionist / Robyn Grogitsky-Ramirez / Luna Elva Ramirez / Glenn Ramirez / Atlas Glenn Standford Ramirez - Mother who made a Tard Baby and parades her on instagram because she refused to follow any medical oversights

[Johnl260589]

Lmao always has the phone out and recording but always misses Luna making purposeful movements. So is Robyn admitting that any other time she’s said things were purposeful, they weren’t really? She’s acting like this “purposeful” grab of the seahorse and her forcing the bucket wherever her arm seizes to, in hopes she would release the toy is like a first time thing??? But I’ve seen countless times where she’s said this exact same shit lol “WOW GUYS I missed it on cam but this lil sassy girl just got up and walked by herself!! We all Witnessed it here!!!” and then the camera pans to a potato as usual.

 

[MirnaMinkoff]

If anyone was wondering how much of an idiot and bad parent the father was here ya go:
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He obviously has no plans to actually change that diaper and is just letting the kid sit in it.

I think they are starting to get realize what it’s like to care for a baby that isn’t a silent potato they can tend to at their leisure.
Those acne scars are rough. Me thinks Glenn might have indulged in anabolic steroids in the recent past.

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New IG Post:
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"It’s been a while since I gave a Luna update!

Our girl is kicking so much butt! These are a few clips of just a fraction of her big accomplishments she’s made in JUST THE PAST 2 MONTHS! In speech/feeding therapy Luna’s come leaps and bounds and can now eat up to a scant ¼ cup of purées orally in one sitting! Shes grasping and releasing toys with so much more ease. Her eye contact and tracking abilities have exploded!! Her ability to express her emotions is strengthening (something many folks with traumatic brain injuries struggle with) as seen by all the sassy faces she’s discovered she can make lately ! Her tightness on her right side is improving! She decided to take her first assisted steps (1st video) without any prompting, she just knew what to do! Her ability to be in and stay in tummy time has drastically increased and she’s showing us that she’s ready to start creeping and crawling (we just have to strengthen her neck and core more bc her head is very heavy)! And sooo much more! Gaaaahh were so proud of her!

Luna recently had a sleep study done where we learned she doesn’t have any type of apnea and that she IS getting enough REM sleep (something we were worried about- since so much healing and physiological processes occur during this phase of sleep). Overall we found out Luna’s doing well in the breathing and sleeping department she also had an EEG done, this monitors brain wave activity. Her results came back very abnormal, which is to be expected with her unique brain. Unfortunately we found out that Luna’s myoclonic jerking (we were previously told was NOT seizure activity) is in fact myoclonic seizure activity. So that SUCKS. BUT we’re in the process of getting Luna in with a pediatric epileptologist in Cali to help us support Luna in this area so we’re hopeful in adding this new specialist to Luna’s team.

I know we’ve been quiet on here for a while, at least in posts. There’s a whole slew of reasons for that but we just wanted to say that Luna and I are here to stay thank you for those how support us from afar on our little slice of social media! You all mean the world to our family!"

Spoiler: Vids Attached to Post

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Robyn is up to some BS. Between the “I want to be an advocate” and hinting at lots of things they can’t discuss atm I expect to see a non-profit being registered in the near future. I expect Robyn to be peddling BS to parents of disabled kids on IG long after Luna is gone or maybe start some retard group that demands Medicaid cover reiki healing.

 

[GenociderSyo]

So looks like the "music therapy" was just a hospice chaplain.

She's also trying some does it work shit that isnt very interesting (Bout 5 vids on it):

 

[multiverse]

So looks like the "music therapy" was just a hospice chaplain.
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She's also trying some does it work shit that isnt very interesting (Bout 5 vids on it):
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If they're pushing the chaplain on them, that's a sign the end is nigh, and they're hoping Robyn makes peace with it instead of dragging Luna's dead body around the house for months and puppeting it through physical therapy.

 

[Ronnie Rocket]

Unfortunately we found out that Luna’s myoclonic jerking (we were previously told was NOT seizure activity) is in fact myoclonic seizure activity. So that SUCKS. BUT we’re in the process of getting Luna in with a pediatric epileptologist in Cali to help us support Luna in this area so we’re hopeful in adding this new specialist to Luna’s team.

Well DUH.

And you don't need a specialized pediatric epileptologist, put her on valproic acid and shut the fuck up already.

 

[multiverse]

Well DUH.

And you don't need a specialized pediatric epileptologist, put her on valproic acid and shut the fuck up already.

And why does she always need doctors in California? Their state of residence is Nevada and their medicaid runs through that state's system.

Robyn is just hoping to grift one more California vacation out of her dopy followers before Luna bites the dust and puts an end to their gibs me dats.

The kid doesn't need any more specialists. She needs boatloads of anti seizure meds and all of the morphine on a drip. Make the child comfortable and safe, and say your goodbyes.

Maybe listen to the chaplain and start making funeral arrangements, Robyn.

 

[Android raptor]

Aight, I'm gonna go ahead and place a bet that Luna will be dead by August. All this shit combined with her looking worse and worse really does make it feel like its the final stretch.

Unlike with Gwen I doubt this thread will need to be locked when it happens, because Robyn I'm sure with continue to post crazy shit for months, if not years afterwards. Probably also try to shit out more kids too.

 

[heavycream]

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New IG Post:
View attachment 2291103
"It’s been a while since I gave a Luna update!

Our girl is kicking so much butt! These are a few clips of just a fraction of her big accomplishments she’s made in JUST THE PAST 2 MONTHS! In speech/feeding therapy Luna’s come leaps and bounds and can now eat up to a scant ¼ cup of purées orally in one sitting! Shes grasping and releasing toys with so much more ease. Her eye contact and tracking abilities have exploded!! Her ability to express her emotions is strengthening (something many folks with traumatic brain injuries struggle with) as seen by all the sassy faces she’s discovered she can make lately ! Her tightness on her right side is improving! She decided to take her first assisted steps (1st video) without any prompting, she just knew what to do! Her ability to be in and stay in tummy time has drastically increased and she’s showing us that she’s ready to start creeping and crawling (we just have to strengthen her neck and core more bc her head is very heavy)! And sooo much more! Gaaaahh were so proud of her!

Luna recently had a sleep study done where we learned she doesn’t have any type of apnea and that she IS getting enough REM sleep (something we were worried about- since so much healing and physiological processes occur during this phase of sleep). Overall we found out Luna’s doing well in the breathing and sleeping department she also had an EEG done, this monitors brain wave activity. Her results came back very abnormal, which is to be expected with her unique brain. Unfortunately we found out that Luna’s myoclonic jerking (we were previously told was NOT seizure activity) is in fact myoclonic seizure activity. So that SUCKS. BUT we’re in the process of getting Luna in with a pediatric epileptologist in Cali to help us support Luna in this area so we’re hopeful in adding this new specialist to Luna’s team.

I know we’ve been quiet on here for a while, at least in posts. There’s a whole slew of reasons for that but we just wanted to say that Luna and I are here to stay thank you for those how support us from afar on our little slice of social media! You all mean the world to our family!"

Spoiler: Vids Attached to Post

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What a blatantly manipulative/delusional post this was from Robyn.
My favourite moment in these clips has to be the bit where they're trying to coax luna to drop the toy they guided into her vice-like reflex grip. They can't get her to drop it so Robyn starts roughly shoving the bucket up against her hand to try pry it out of Luna's fingers or force her to let go, while her eyes meander around the room aimlessly. It doesn't work. LMFAO.

Also, correct me if i'm wrong, but doesn't the majority of the beneficial synaptic downscaling, regeneration and memory consolidation occur during NREM (I.e. deep sleep stage 4) as opposed to REM cycles?
I recall reading some cognitive research that showed enhancing the former lead to much greater improvement on psychometric inventories the following day while the boosting REM had comparatively minimal effect.

(Edit -- found it: Marshall et al (2006) did this in a brain stimulation study via Transcranial direct current stimulation (TDCS) to amplify existing brain activity in either modality, then tested performance on declarative and nondeclarative memory tasks the following day. )

 

[eternal dog mongler]

Well DUH.

And you don't need a specialized pediatric epileptologist, put her on valproic acid and shut the fuck up already.

I'm voting phenobarbital.

I barely see any epileptics on it unless they're old and have been on it forever, but might as well let Luna ride off into the potato sunset high as a kite on goofballs.

 

[Jetty2maxx]

I wonder if this is what she was saying evil Medicaid won't cover. I sincerely hope they don't pay for an eye gaze machine for a blind child

 

[GenociderSyo]

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I wonder if this is what she was saying evil Medicaid won't cover. I sincerely hope they don't pay for an eye gaze machine for a blind child

It very well might be since she has mentioned it in a few PT vids wanting it. And of course she knows all 4 of them co-sleep and i doubt being asleep stops her seizures.

 

[JaneThough]

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I wonder if this is what she was saying evil Medicaid won't cover. I sincerely hope they don't pay for an eye gaze machine for a blind child

Omg are we heading into an Eagle Eyes saga? The Hooligan parallels are crazy

 

[MirnaMinkoff]

It very well might be since she has mentioned it in a few PT vids wanting it. And of course she knows all 4 of them co-sleep and i doubt being asleep stops her seizures.

There’s no way Glenn is “co-sleeping” with all of them. Co-sleeping with Robyn and the utterly silent Luna I’m sure was no biggie but now that Atlas is there I’m sure Glenn is sacking out elsewhere to get a full nights sleep.

 

[multiverse]

Omg are we heading into an Eagle Eyes saga? The Hooligan parallels are crazy

Speaking of: Gwen still posts about her daughters every damn day. She's even busy making new pis of them all Disney-fied. But Cal finally got a graduation unmarred by goblins so that's something.

Spoiler: Gwen stuff

 

[Jeep1971]

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I wonder if this is what she was saying evil Medicaid won't cover. I sincerely hope they don't pay for an eye gaze machine for a blind child

An eye-tracking device for a blind kid is like giving a pair of boots to a guy with no feet.
Also, co-sleeping with Luna is not a sane idea. If she rolls over on her, that skull will pop like a tick.

Speaking of: Gwen still posts about her daughters every damn day. She's even busy making new pis of them all Disney-fied. But Cal finally got a graduation unmarred by goblins so that's something.

Spoiler: Gwen stuff

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Wow, the kid got a mention on Mom's socials without her once mentioning his sister's. He got a moment of his own.

 

[Disgruntled Pupper]

Glen absolutely hates being a father and dealing with an actual baby lol.

Luna will still not see anti-seizure medication even with this "new" information. Putting her on anything will eliminate or greatly reduce the movements that make up the PT videos, and without those how will Robyn own the haters and continue to grift?

The longer hair on Luna looks awful. Unless they're planning to dress her as Riff Raff if she survives to Halloween, they need to cut that thin, greasy shit off.

 

[Deathclaw Tiddehs]

So looks like the "music therapy" was just a hospice chaplain.
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She's also trying some does it work shit that isnt very interesting (Bout 5 vids on it):
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Uh oh. Hospice is here, which means doctors think she has <6 months. Depressing, but it would be mercy for the poor kid.

Also, is it just me or does it look like woowoo mommy is putting MAKEUP on Luna? Her cheeks look like they're the same color as woowoo mommy's cheeks.

 

[snka]

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New IG Post:
View attachment 2291103
"It’s been a while since I gave a Luna update!

Our girl is kicking so much butt! These are a few clips of just a fraction of her big accomplishments she’s made in JUST THE PAST 2 MONTHS! In speech/feeding therapy Luna’s come leaps and bounds and can now eat up to a scant ¼ cup of purées orally in one sitting! Shes grasping and releasing toys with so much more ease. Her eye contact and tracking abilities have exploded!! Her ability to express her emotions is strengthening (something many folks with traumatic brain injuries struggle with) as seen by all the sassy faces she’s discovered she can make lately ! Her tightness on her right side is improving! She decided to take her first assisted steps (1st video) without any prompting, she just knew what to do! Her ability to be in and stay in tummy time has drastically increased and she’s showing us that she’s ready to start creeping and crawling (we just have to strengthen her neck and core more bc her head is very heavy)! And sooo much more! Gaaaahh were so proud of her!

Luna recently had a sleep study done where we learned she doesn’t have any type of apnea and that she IS getting enough REM sleep (something we were worried about- since so much healing and physiological processes occur during this phase of sleep). Overall we found out Luna’s doing well in the breathing and sleeping department she also had an EEG done, this monitors brain wave activity. Her results came back very abnormal, which is to be expected with her unique brain. Unfortunately we found out that Luna’s myoclonic jerking (we were previously told was NOT seizure activity) is in fact myoclonic seizure activity. So that SUCKS. BUT we’re in the process of getting Luna in with a pediatric epileptologist in Cali to help us support Luna in this area so we’re hopeful in adding this new specialist to Luna’s team.

I know we’ve been quiet on here for a while, at least in posts. There’s a whole slew of reasons for that but we just wanted to say that Luna and I are here to stay thank you for those how support us from afar on our little slice of social media! You all mean the world to our family!"

Spoiler: Vids Attached to Post

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Wow first google results, but it seems only thing Luna is gonna be kicking is the box.

Good job Robyn, definitely an improvement.

 

[Vi0l3t]

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I wonder if this is what she was saying evil Medicaid won't cover. I sincerely hope they don't pay for an eye gaze machine for a blind child

I like how shes casually blaming the shunt for her not talking. I doubt Robin wakes for Luna at all. Even if Luna did wake, what would she possibly need? She just lays there.

 

[Barbarella]

Hasn't Luna been on and off hospice since day one? At this point, it’s just another attention grabber for Robyn. Another thing to prove doctors wrong and show what a warrior Luna is.

Boy, is she going to have a surprise when the prediction comes true.

Luna has tears in her left eye in announcing the chaplain. Probably does have corneal abrasions. I’m surprise Robyn didn’t say she knows, as an empath, that Luna is worried about her Mama working too hard and so is crying. Truthfully, she probably didn’t notice.

Surprised Gwen is still playing the game-are her subs still there? It was VERY shocking to see her congratulate Cal without making it about his sisters though.

TBH, I wouldn’t go to hospitals in Nevada either, after an awful experience or ten. But Robyn doesn’t care about doctors or believe them anyway, so why travel? Disney is getting pretty expensive.